The course will start with two intensive modules, from Wednesday to Saturday, to line up basic notions.
The teaching activity is then divided into eight modules, from September 2022 to June 2023.
Lessons are held once a month, from 10 a.m. to 7 p.m. on Friday and from 9 a.m. to 6 p.m. on Saturday.
Lessons will be held at Università Cattolica del Sacro Cuore, in Rome and Milan. Part of the Course can be provided by distance learning.
Comparative healthcare systems legislations in Europe. (EPF could bring the patient prospective).
European Legislation on health/ EU Competences on health
EU competences on health/ EU institutions and who they represent, EU regulation on medicines (EMA)
Health Technology Assessment
Medical devices regulation, EU cooperation on HTA, HTA network and EUnetHTA.
Value-Based Healthcare in the world objectives + pricing and real word evidence, PROMS and PREMS
Patient involvement from an idea to a systemic change patient involvement definition, patient involvement in research / healthcare design / medicines.
The added value of patient organizations, the role of patient organizations in the healthcare landscape, key characteristics of a well-functioning patient org (governance, transparency, accountability, representativeness), working with volunteers, build the capacity of your members and your board of directors. Internal communications within the organization. Conflict of interest.
The added value of patient organizations, the role of patient organizations in the healthcare landscape, advocacy strategy (stakeholders mapping, advocacy messaging, navigating the EU bubble).
Patient & Family Caregiver Engagement
Patient Engagement is involves encouraging patients (and their own caregivers) in their own care to help improve health outcomes, drive better patient care, and achieve lower costs. It combines a patients’ knowledge, skills, ability, and willingness to manage their own care with communications designed to promote positive behaviours.
Planning and bookkeeping
Budget, diversification of source of funding, audit reediness, Annual reporting standards (how to ensure transparency and accountability via official reporting).
The concept of fundraising, how to set a fundraising strategy, the challenge of evaluating fundraising.
Research methodology. The project cycle and management + project evaluation responsible.
Consumer health psychology
Health decision making has become a fundamental part of everyday patients’ and people life. In the relatively simple course of making a meal choice, planning a trip to the gym, or forgetting to pick up a prescription, patients’ routine choices will cumulatively define their health. Consumer health psychology offers a theoretical framework to identify the human factors behind discrepancies between patients’ healthy intentions and actual behaviours is crucial to understanding health decision making.
Psychology for social marketing
A fundamental goal of social marketing is to inﬂuence people’s healthy behaviour, such as increasing patients to adhere to medical prescription or healthy lifestyle, or to engage in preventive behaviours. For example, social marketing efforts can be aimed at improving the well-being of the population more generally by inﬂuencing policy makers. Psychology for social marketing offers effective theoretical lenses for the understanding and operative skills regarding designing communication and social marketing projects applied to the promotion of wellbeing and health, environmental sustainability, and community culture.
Leadership, Public Speaking, Team working. New paradigms of leadership, developing your leadership style, embedding positive governance, develop your communications skills as a leader, managing the relations with new generations of patient advocates (youth leadership).
Soft skills labs / Communications (internal vs external)
Internal and external communication, communications strategies, public relations, health communication. Negotiation and Conflict Management.
Different models of partnership (IMI, EFPIA) how to manage the perceived or real conflict of interest.
Big data, GDPR, artificial intelligence what’s in it for patient, Digital communication, digital regulation.